General News

Historically, people with CF have been advised to follow a high fat, high calorie diet with limited guidance around nutrient density and the quality of foods. This was because malnutrition was a common feature of CF and was directly linked to lower lung function and poorer survival. But times are changing. People with CF are living longer, healthier lives and some people are noticing changes in their weight after starting modulator therapies such as Trikafta. Eating more than you need has been linked to new health concerns in CF such as obesity, insulin resistance and other hormonal disturbances. It may also [...]

Airway clearance and improving strength, endurance and physical fitness has always been essential for optimizing lung function in Cystic Fibrosis (CF). People with CF are encouraged to adopt an airway clearance routine early on, from initial diagnosis. This is paralleled with maintaining a physically active lifestyle to improve overall health and quality of life. Recent research validates previous findings that no one particular form of airway clearance (AC) is superior to another. As such, people with CF are encouraged to use airway clearance techniques (ACTs) that best fit with their preferences, finances, and lifestyle. People with CF often wonder if aerobic [...]

The North American CF Conference is the largest annual assembly of doctors, researchers, allied health professionals and many others dedicated to the treatment of Cystic Fibrosis. The 2022 edition of the conference was held in Philadelphia last October. As always, your St. Michael’s team was well represented at the conference. NACFC 2022 - Anne Stephenson Dr. Anne Stephenson presented her poster at NACFC about survival and health outcomes following liver transplantation in CF. Data from both Canadian and US registries were used. The study cohort included 407 liver transplant recipients between 1987 and 2019. Most transplant recipients were children. Median [...]

 Date of Session: Dec 15, 2021 The Toronto Adult CF Centre's roll out process of accessing Trikafta (a new CFTR Modulator) for eligible CF patients at this centre. Speakers: Dr. Elizabeth Tullis, Director: Toronto Adult CF Centre Kevin Curley, Clinical Pharmacist Moderator: Annie Thomas-Diceman, Social Worker

We strongly recommend all CF patients receive the vaccine to protect themselves and others from infection. Vaccination against the COVID-19 virus has been shown in large scale trials to protect you from getting sick, being hospitalized or dying after infection with this virus. People with CF are vulnerable because they have underlying lung disease as well as some of the risk factors associated with worse health outcomes such as diabetes. Studies have shown that people with CF who have received a transplant are at increased risk of being admitted to the hospital, requiring oxygen and even dying after infection with [...]